Tinnitus FAQ
www.bixby.org/faq/tinnitus.html
a resource for understanding tinnitus,
not a substitute for a health care provider
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Tinnitus FAQ |
www.bixby.org/faq/tinnitus.html
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| top of page | Online Resources |
| Quick Directory |
| .top of page | Online Resources |
| Usenet Newsgroups |
On the Internet, this Usenet newsgroup is the primary discussion forum for tinnitus. The t-faq is the official FAQ for alt.support.tinnitus. Several other peripheral newsgroups exist where people at risk for tinnitus may be found, as well as for various health disciplines relevant to the treatment of tinnitus. (Editor's Note: Be advised that this newsgroup has had obscene posting and you may be quite repulsed by them! Please! Do not respond to them!)
Those individuals without direct access to Usenet newsgroups can post email to one of the many post-only e-mail Usenet gateways. When asking questions via this method, make sure the message asks responders to transmit information to you email address. The gateways will not allow you to read replies that are posted to the Usenet.
This newsgroup allows individuals with jaw disorders to provide support for each other. The organizer, M. Stewart, is hoping to attract doctors, pharmacists, and physiotherapists to post suggestions, with the understanding that the newsgroup is not "asking for a diagnosis" over the net. Suggestions and opinions are welcomed to allow individuals to make educated decisions about surgery options, jaw exercise information, and medication side effects.
There are many symptoms related to jaw-disorders, such as myofascial pain, severe headaches, Tinnitus, sleep disorders, depression and stress, anxiety attacks, etc.
Lyme disease is considered a contributor to the occurrence of tinnitus. This newsgroup allows medical personnel and researchers a chance to communicate about Lyme disease in particular.
| top of page | t-faq Background |
| Wide Web Chat Sites |
Thursdays and Fridays; 9:00 pm Eastern Time Zone
Saturday at 2:00 pm Eastern Time Zone
http://www.eskimo.com/~carol/T.html
Carol B IRC: sTrey carol@eskimo.com
The IRC (internet relay chat) is in the same category as the alt.support.tinnitus newsgroup. IRC's provide a way to interact in real time with other people who have and/or treat tinnitus. The IRC #tinnitus resource is maintained through a web page containing the chat schedule, IRC help, and links to IRC software. The front-end to the web page is listed in Carol's "sig." There are generic tinnitus links, including the Tinnitus FAQ, but most of the material is related to the chat group.
Antecdotal Information about IRC #tinnitus |
| The IRC #tinnitus web page has caused my server to hiccup. I tried the
following and got right through.
After the page loads, scroll down the page and look for the flesh colored ear in the right margin. Click and go to her tinnitus page. |
| top of page | t-faq Background |
| World Wide Web Sites |
Home Page Site for the "American Tinnitus Association".
(Editor's Note: When I tried to connect 2/18/97, I received the html code exposed.)
The Vestibular Disorders Association (VEDA) is a nonprofit organization that exists to provide information and support to people with inner ear disorders such as labyrinthitis, BPPV, and Meniere's disease. Symptoms of vestibular disorders may include dizziness, imbalance, vertigo, nausea, and fuzzy vision, and may be accompanied by hearing problems. Other symptoms are often reported. There is a separate page written in Spanish.
(Editor's Note: When I tried to load the page 2/18/97, the images did not display).
The Association for Research in Otolaryngology is an international association of scientists and physicians dedicated to scientific exploration among all of the disciplines in the field of otolaryngology. Research efforts involve the ear, nose, head, neck and related functions including hearing, balance, speech, taste and smell among others. A wide range of scientific approaches is represented including biochemical, physiological, behavioral, developmental and evolutionary.
Canadian Hearing Society
Toronto, Ontario, Canada
The Canadian Hearing Society provides services that enhance the independence
of deaf, deafened and hard of hearing people, and encourage prevention of
hearing loss. Incorporated in 1940 to impartially serve and support deaf,
deafened and hard of hearing people, parents of deaf and hard of hearing
children and to educate the hearing public. For additional information contact
Cathy O'Connor: coconnor@chs.ca
Hearing Exchange Online contains Web pointers to just about everything you wanted to know about hearing.
H.E.A.R. (Hearing Education and Awareness for Rockers) is a non-profit organization dedicated to raising awareness of the real dangers of repeated exposure to excessive noise levels which can lead to permanent, and sometime debilitating, hearing loss and tinnitus.
The articles provide reference material about hearing protection and are copyrighted by Cabot Safety Corporation. Includes a series of 20 articles on the study of hearing protection.
NIOSH is the acronym for the National Institute for Occupational Safety and Health, a United States Federal agency established by the Occupational Safety and Health Act of 1970. NIOSH is part of the Centers for Disease Control and Prevention (CDC) and is responsible for conducting research and making recommendations for the prevention of work-related illness and injuries. In 1972, NIOSH published Criteria for a Recommended Standard: Occupational Exposure to Noise, which provided the basis for a recommended standard to reduce permanent hearing loss induced by occupational noise.
Self Help for Hard of Hearing People, Inc.
7910 Woodmont Ave., Suite 1200
Bethesda, MD 20814
301-657-2248;
TTY 301-657-2249;
FAX 301-91309413
A non-profit educational organization, dedicated to the well-being of people
of all ages and communication styles who do not hear well. SHHH is the largest
international consumer organization of its kind.
Http://www.Infinite.org/Naturopathic.Physician/AANPweb.html
Http://www.Infinite.org/Naturopathic.Physician/
This is the home page of American Association of Naturopathic Physicians.
There is a listing by state of physicians. Members attend school for 4 years
and will soon be recognized in every state as physicians.
(Editor's Note: On 2/1/97 could not connect to page. As soon as I can connect,
I'll provide a better synopsis for this site.)
Center for Current Research
708 Aubrey Avenue, Ardmore PA 19003-1802
Toll-Free: 800-253-7888 | Phone: 610-649-3165 | Fax: 610-873-0113
Email: ccr@libertynet.org | Website:
http://www.lifestages.com
This webpage provides free background information on tinnitus. The Center reviews professional medical literature daily to locate information. If an order were placed, they conduct a search through current medical journals and health magazines published worldwide for the latest clinical research on new treatments, new drugs, diagnostic tests, preventive measures, or any other aspect . They compile a printed report with as many as 25 summaries (paragraph of detailed description, including methodology, results, and conclusions).
Reuters Health Information Services is producing a health and medical global daily news service to keep professionals and consumers abreast of healthcare news stories.
Reuters Professional Medical News, a text news wire for medical professionals, covers the most important news in health and medicine each business day.
Reuters Health eLine is a consumer-oriented medical news service. This daily news feed of 8 to 10 general health stories provides consumers with in-depth medical information that is easy to understand.
Currently, registering as a new subscriber provides free access to these sections. In the future, a monthly fee will be charged for full access to the Reuters Health Website.
We have recently created a website called Healingwell.com. It is an information site on chronic illnesses and disorders. Lara is an audiologist and has worked with many Tinnitus patients and realize that my patients are looking for information and support. We decided to add a tinnitus community board to our current list of message boards and chats and would eventually like to add a tinnitus resource page as well.
Lara and Peter Waite
Tinnitus Community - Message Boards &
Chat
http://community.healingwell.com/community/scripts/topics.pl?NodeID=135922&ClientID=15808
To view a list of all the communities we offer,
visit
http://community.healingwell.com
HealingWell.com - Community, Information, Resources on Diseases, Disorders and Chronic Illness
email: webmaster@healingwell.com
The Hyperacusis Site: An online page that has information about hyperacusis
and what can be done to relieve and/or cope with it.
(Editor's Note: Counldn't access site 2/18/97).
There is a lot of information available by joining the Meniere's Discussion Group. This is an email list with about 1000 patients and a few otologists. You can join by sending an email to menieres@smtp.cochlea.com with SUBSCRIBE as the subject. No message body is needed. You will receive instructions by return email.
Washington University Department of Otolaryngology
The Ménière's Page
The Ear and Skull Base Center
Washington University School of Medicine
Department of Otolaryngology - Head and Neck Surgery
St. Louis, Missouri, USA
Appointments: (314)-362-7509
Dr. J. Gail Neely, M.D. and Dr. Joel Goebel, M.D.
Information available includes the symptoms and incidence of Meniere's disease with explanations about the underlying causes of Meniere's disease, compilation of treatments for Meniere's disease, Frequently asked questions (FAQ), help with a low-salt diet, dependence of Meniere's symptoms on the menstrual cycle in some women, and links to related web sites.
Johns Hopkins University Center for Hearing and Balance
School of Medicine, Research and Training Center for Hearing and Balance
The Center includes researchers, teachers, clinicians, and others in the Hopkins medical community. The goal of the Center is to perform basic and clinical research, train basic and clinical investigators, and disseminate research results and relevant information to the medical community and the general public. Research is centered on auditory (hearing) and vestibular (balance) function in normal subjects and in patients with hearing and balance disorders, and on rehabilitation.
Learn about the basic research being done at NIDCD on cochlear hair cells.
(Editor's Note: Couldn't contact server 2/18/97).
Washington University School of Medicine
Department of Otolaryngology
Cochlear Fluids Research Laboratory
St. Louis, Missouri, 63110
Alec N. Salt, Ph.D.
(Editor's Note: Couldn't contact server 2/18/97. When I connect, I'll provide a summary of site content.)
Oregon Hearing Research Center
Oregon Health Sciences University
3181 SW Sam Jackson Park Road
Portland, OR 97201-3098
(503) 494-8032 - (503) 494-5656 FAX
The OHSU Tinnitus Clinic was the first medical clinic in the world established exclusively for the treatment of tinnitus. Since its founding in 1974 by Dr. Jack Vernon and Dr. Alexander Schleuning, the clinic has successfully treated more than 7,000 patients with severe tinnitus. The clinic also treats patients with hyperacusis (hypersensitivity to sounds).
Robert L. Folmer, Ph.D.
Deutsche Tinnitus-Liga e.V.
Postfach 349
D-42353 Wuppertal
Fax: ++49 202 4670932
If you´re interested in German treatment methods for tinnitus and/or you want to get information about hospitals in Germany you really should become a member of the German Tinnitus Liga.
(Editor's Note: 2/28/97. Ran into a glich with the link. Will try again in future and include more information.)
Hadassah Medical Organization
I manage a website which describes the treatment of TINNITUS in our hospital.
url: http://www.hadassah.org.il/hmo/tinnitus/tinnitus.htm. You are welcome to visit it.
Dr. Maksim Gur
Deputy Director, Information Systems Division ( ...and amateur webmaster
)
Hadassah medical organization
tel 972 2 6777414
fax 972 2 6778393
pob 12000 Jerusalem Israel 91120
mailto:gur@hadassah.org.il
gopher://phil.utmb.edu/00/UTMB%20ENT%20Grand%20Rounds/TINNITUS_CME
A University of Texas paper on the causes and treatments of tinnitus.
NIDCD HHIRR
555 N. 30th Street
Omaha, NE 68131
800 320-1171 (V/TDD)
402 498-6331 (FAX)
E-mail:
NIDCD.HHIRR@boystown.org
The tinnitus publication is a product of the National Institute on Deafness and Other Communication Disorders (NIDCD) Hereditary Hearing Impairment Resource Registry (HHIRR).
The HHIRR is designed to be a national resource in the study of hereditary hearing impairment through three primary functions.
http://members.aol.com/neurosense/tinnitus.html
TINNITUS - NEW HOPE FOR A CURE by Paul Van Valkenburgh. To assist researchers doing keyword searches, the entire index from the book online is located at:
http://members.aol.com/neurosense/bookindex.html
Information about Tinnitus and the treatment of Tinnitus by Hypnosis. Tinnitus...The Series written exclusively for Hearing Health Magazine by Kevin Hogan Ph.D., D.C.H.
The Oregon Tinnitus Data Archive serves as a reference source for quantitative information about clinically-significant tinnitus. Future versions are planned to expand the contents beyond the current scope.
University of Maryland
Tinnitus and Hyperacusis Center
Baltimore, MD
Tinnitus Retraining Therapy, uses a combination of low level, broad-band
noise and counseling to achieve the habituation of tinnitus, that is the
patient is no longer aware of their tinnitus, except when they focus their
attention on it, and even then tinnitus is not considered annoying or bothersome.
http://www.ucl.ac.uk/~rmjg101/tinnitus1.html
Royal National Institute for Deaf People
Medical Research Unit
London, UK
Tinnitus Retraining Therapy (Habituation) which seems fairly effective, suggests that masking should not be so loud as to completely cover the T. The Medical Research Unit of the Royal National Institute for Deaf People, London U.K. has been working for the last 22 years towards a goal of eradicating the perception of distressing tinnitus. For the last 8 years our work has involved intense collaboration with Professor Jastreboff head of the Tinnitus and Hyperacusis Centre at the University of Maryland at Baltimore USA
http://www.mindspring.com/~nagler
SOUTHEASTERN COMPREHENSIVE TINNITUS CLINIC
Atlanta, Georgia
(404) 531-3979
Stephen M. Nagler, MD, FACS
Director
Their basic approach is to evaluate the tinnitus sufferer medically, otologically, audiologically, and psychosocially to establish a "Tinnitus Patient Profile," which is then used as a basis for designing an individually tailored treatment program selected from a menu of available options. The menu includes masking and auditory habituation as well as several complementary approaches such as hypnosis, cognitive therapy, biofeedback, relaxation methodology, pharmacologic management, and similar techniques and procedures.
| top of page | t-faq Background |
| Non-English Web Sites |
http://home.sol.no/sveno/tinnitus.htm
Web site with a little information about Tinnitus in norwegians language. When the page loads, look for the word Tinnitus to link to the information page. There is an additional link to a Web page in Danish.
(Editor's Note: When this page loads, it appears with the HTML code showing. Information submitted by Sven Olsen: sveno@online.no, Wed, 29 Jan 1997 20:50:40 GMT).
(Editor's Note: Follow the link to the translation).
"When I was diagnosed Meniere`s I tried to get information about this disease.
I tried several places, but it was impossible to get updated information
in Norwegian (Scandinavian) language."
Sjur Elling Hana: shana@sn.no
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